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Being a Mother of a Child with a Chronic Disease

Posted by on Sep 24, 2013 in Blog, For Mothers | 0 comments

Being a Mother of a Child with a Chronic Disease

Being a Mother of a child with a chronic disease is stressful. While I am primarily setting this blog site up to help the dads deal with the stresses of a child with a chronic illness, I certainly do not mean to diminish the intensity of stress on moms. I have been dealing with my child having had cancer 6 times over the last 35 years and I can assure you, the moms, that no one ever asked me how I was doing. Thus the emphasis on dads. It is my goal to have an effect on all of our families by focusing on creating an on line, on going...

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Brothers and Sisters of Chronically Ill Children

Posted by on Sep 24, 2013 in For Children | 0 comments

Brothers and Sisters of Chronically Ill Children

To the brothers and sisters of chronically ill children, this blog is not just for the sick child in the family but for you, the brothers and sisters, that are affected by the disease as well. You are important as well. I have been dealing with a sick daughter for 35 years so I have a boat load of experience and am offering  a perspective about this . I have found that it sometimes seems that the “sick” kid gets all the attention and everything revolves around that person. You are probably feeling left out and angry.  While you try to...

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Being a Father of a Chronically Ill Child

Posted by on Sep 19, 2013 in Blog, For Fathers | 2 comments

Being a Father of a Chronically Ill Child

  What I want this space to be is a place where we as men can come together and share our experience of dealing with being a father of a chronically ill child. There are few if any venues where men can talk about things that are tearing them apart without worrying about being shamed or criticized. This blog is the safety zone where you can sign in using a fake name and maintain annonimity and get and share info about what is really on your mind. To know you are not weak , you are not crazy ,and most importantly you are not alone. We are here...

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Addisons Disease

Posted by on Sep 16, 2013 in Children's Chronic Diseases | 0 comments

Addisons Disease

One of the most notable people diagnosed with Addisons Disease was our 35th President, John F Kennedy. Although it was not officially diagnosed until 1947 when he was 30 years old, symptoms first appeared as stomach pain in 1930 at age 13. By 1934 he was sent to the Mayo Clinic where they diagnosed colitis or it was called colitis. By 1940 his back started hurting him, by 1944 he had his first back operation. Addisons Disease, also known as chronic primary adrenocortical insufficiency, is caused by a lower than normal production of hormones,...

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AIDS

Posted by on Sep 16, 2013 in Children's Chronic Diseases | 0 comments

This will be a post about aids.

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